These words are written describing the tiredness and fatigue experienced by patients of Sjögren Syndrome. An unexplainable and extreme fatigue. Which nobody can understand or empathise with. Making their life a daily battle without any cure or any medicine which may lessen their symptoms.

It’s a difficult task

Almost every days

To get out of bed

Feeling all great

Limbs are sore

Laden with weight

Body feels anchored

To the floor by chains

Brain is crawling

Fuzzy and dull

Taking a shower

Leaves me tired as hell

Grooming and clothing

Saps all my juice

Mind gives up

As I reach my shoes

I drop on the bed

Lie down still

Gaze at the ceiling

Fatigued and dead